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Jodee C Kulp
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Books
• The Whitest Wall - Book One Bootleg Brother's Trilogy

• The Best I Can Be - Living with Fetal Alcohol Syndrome

• Our FAScinating Journey


Articles
• What is really behind the recent brutal beatings in Minnesota?

• Encouraging words for Fetal Alcohol Awareness Day.

• In Whose Best Interest?

• United We Stand . . . Divided We Fall

• You’re Child Has Fetal Alcohol.

• See the Light -- 'errrr side of Fetal Alcohol

• Tribute to Mak

• Steps to Learning

• Different folks, different strokes in learning....

• Changing a ‘Pair of Dimes’


Poetry
• Impatiens In My Garden

• Bed 43

• Twirling, swirling heartache

• Grandpa Knows

• OTHER mother

• Committed

• A Pit Bull With Lipstick

• K N O W S.

• W i t h e r

• UN -- b e c o m i n g

         More poetry...
News
• Toolbox Parent Website Helps Families Raising Tough Youth

• FOUR GOLD BOOK AWARDS by Mom's Choice

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Recent articles by Jodee C Kulp
• United We Stand . . . Divided We Fall
• Steps to Learning
• Encouraging words for Fetal Alcohol Awareness Day.
• What is really behind the recent brutal beatings in Minnesota?
• In Whose Best Interest?
• See the Light -- 'errrr side of Fetal Alcohol
• Tribute to Mak
• You’re Child Has Fetal Alcohol.
• Different folks, different strokes in learning....
• Changing a ‘Pair of Dimes’
• A Walk on the Wild Side
           >> View all 12

Health/Wellness

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A Silent Voice of Fetal Alcohol
By Jodee C Kulp
Last edited: Friday, August 15, 2008
Posted: Friday, August 15, 2008

Commitment to growing

Mom, don't you understand that I am committed with rules and regulations that if I don't obey they will increase my stay, my time, my life will never be my own. I am to participate and comply and obey and yet because they cannot get my medications filled it can be my demise - once again - and I will not let that happen because of medication. I did that once because I did not understand, but now I do.

I lost my life and my will to live not understanding my medication and what it can do, that it can curl my fingers and toes and scrunch up my stomach so I cannot eat if the helping pills are wrong in dose or type so what I thought could help can hurt. I cannot unravel myself again. I have worked too hard to rebuild from nothing. Yet without the medications to sleep how will I not pace, how without sleep will I participate in groups and activities the next day.

You wonder why I worry and and am full of anxiety - it is my life they take - when I cannot take my perscription because it is unavailable. And I have heard it before, that they understand, but they dont't.

They will judge me. They always do.
On behaviors I may be unable to deal with and so I would rather risk fighting to get what I need than lose what I have gained.
I have been taught to be compliant - med compliant.

To obey the hospital where they taught me how, and when, and how much, to mould my mind to even and without this prescription filled I cannot be - the me - they desire and want for me to be free.

Red tape and government rules I cannot scale without your help.
I need a conference call between my doctor, and you, and the pharmacy. I will even pay for the meds myself to remain compliant.
How can I prove myself if I cannot have the tools I need to do the job they require?

I am writing lyrics again mom, for the silent voices of fetal alcohol, I will fight the fight. Help me fight mom, I love you - Liz


Web Site Silent Voices
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